Amyotrophic Lateral Sclerosis Incidence Registry Rule (new)
Maine law (22 MRS 1411) requires the Department of Health and Human Services - Maine Center for Disease Control and Prevention to establish, maintain and operate a statewide amyotrophic lateral sclerosis (ALS) incidence registry. This proposed rule is to govern data collection and data release related to reportable cases of ALS for the purpose of the registry, outlining patient confidentiality and establishing requirements for annual reporting to the Department.